Wednesday, 29 October 2008

Have you ever felt like screaming?

This is my two angelic children watching Thomas the tank on my iPhone while waiting for a paediatrician appointment. It was a brief calm before the storm.

Having one child already diagnosed with autistic spectrum disorder at the age of four following, literally, 2 years of begging someone to pay attention to our concerns, you could be forgiven calling us stupid when we assumed that the assessment process would go smoother with our second child. The assessment team know us, they know we are not neurotic, they know we are not after money or charity, they know we have experience with a variety of conditions personally and professionally and we just want proper care and support for our children, so we would assume they would take us seriously second time around. Wrong on all counts.

Today we had the pleasure of being totally grilled by a 'professional' who has never before been involved in our children's care and just happened to turn up in our last appointment, and all because we went out of our way to reverse a bad situation we were in to accommodate THEM and make their jobs easier. At an increased financial, time and emotional burden to us I might add.

After I literally turned my back on this offensive person to address the professional we actually came to see every concern we had was dismissed, even physical concerns that had been confirmed previously by medical exam had magically disappeared today. Wow this pair truly are miracle workers.

So we are left to seek a second opinion on the physical stuff and cool our heals over the the developmental stuff having no option but to go with team we have the misfortune of living near. But once again we are looking at houses in other NHS trust areas to escape the parade of questionable care we have recently been subjected to, sadly its not an option right now but as soon as it is they won't see us for dust.

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